NSW Perinatal Data Collection (SAPHaRI). Centre for Epidemiology and Evidence, NSW Ministry of Health.
Births for which gestational age was less than 37 weeks were classified as preterm.
Data include all births (stillbirths and live births) in NSW regardless of mother’s permanent place of residence.
Statistical Areas are grouped according to Australian Statistical Geographic Standard (ASGS) remoteness categories on the basis of Accessibility/Remoteness Index for Australia (ARIA version) score.
The NSW Perinatal Data Collection (PDC), formerly the NSW Midwives Data Collection (MDC), is a population-based surveillance system covering all births in NSW public and private hospitals, as well as homebirths. The PDC is a statutory data collection under the NSW Public Health Act 2010.
The PDC encompasses all live births, and stillbirths of at least 20 weeks gestation or at least 400 grams birth weight. Prior to 2006 the PDC encompassed all births of at least 20 weeks gestation or at least 400 grams birth weight. The data collection has operated since 1987 but with population coverage since 1990.
For every birth in NSW the attending midwife or medical practitioner completes a notification form (latest version for 2011: http://internal.health.nsw.gov.au/data/collections/mdc/NSWH%20Perinatal%20Data.pdf), or its electronic equivalent, giving demographic, medical and obstetric information on the mother and the condition of the infant. The PDC form was revised in 1998, 2006, 2011, and 2016.
There are several source systems that generate the PDC data. In 2018, 100% of PDC notifications were received electronically from public and private hospitals obstetric information systems. Electronically submitted records were received by secure upload to the state database. Historically, a proportion of records were received via completed paper forms that were submitted to the System Information and Analytics Branch of the NSW Ministry of Health, where they were compiled into the PDC database.
There are several electronic systems that generate the PDC data including ObstetriX, eMaternity, and Cerner in public hospitals and a variety of systems in private hospitals. ObstetriX is the most commonly used maternity information system in public hospitals in NSW.
Table 1. Perinatal Data Collection Notification Sources, NSW 2018
|Notification source||Local Health District or Hospital||
Per cent of PDC records 2018
All public hospitals in South Eastern Sydney, Illawarra Shoalhaven, Hunter New England, Nepean Blue Mountains and Western Sydney Local Health Districts, as well as some hospitals in Murrumbidgee, Southern NSW, Western NSW and Far West Local Health Districts for part of 2017.
|Cerner||Sydney and South Western Sydney Local Health Districts.||19.2|
|Meditech||Ramsay Private Hospitals - North Shore Private Hospital, Westmead Private Hospital, St George Private Hospital, Kareena Private Hospital and Wollongong Private Hospital.||7.6|
|Sydney Adventist Obstetric Information System||Sydney Adventist Hospital||1.8|
|Healthscope||Healthscope hospitals - Prince of Wales Private Hospital, Norwest Private Hospital, Sydney South West Private Hospital, Nepean Private Hospital and Newcastle Private Hospital||8.0|
|The Mater Hospital database||The Mater Hospital, North Sydney||2.2|
|eMaternity||All public hospitals in South Eastern Sydney, Illawarra Shoalhaven, Hunter New England, Nepean Blue Mountains and Western Sydney Local Health Districts, as well as some hospitals in Murrumbidgee, Southern NSW, Western NSW and Far West Local Health Districts for part of 2017.||59.0|
Note: The total from these sources is slightly below 100% as independent midwives and hospitals with small numbers of births report using PeriForm. These figures are not included.
The information sent to the NSW Ministry of Health is checked and compiled into one statewide dataset. One record is reported for each baby, even in the case of a multiple birth. The PDC includes notifications of births which occur in NSW which includes women whose usual place of residence is outside NSW and who give birth in NSW; it does not receive notifications of interstate births where the mother is resident in NSW. The collection is based on the date of birth of the baby. In 2018 there were a number of records with missing information that has resulted in a fluctuation in trends for analyses of subgroups.
Data are reported by calendar year. For this report, the PDC was accessed via SAPHaRI.
The Accessibility/Remoteness Index of Australia Plus (ARIA plus) is a remoteness index value (or score) based on road distance to major service centres (GISCA). In 2001, the Australian Bureau of Statistics (ABS) applied ARIA cut-off scores to define the Australian Statistical Geography Standard (ASGS) Remoteness Areas (ABS).
The service centre categories are based on population size, with the smallest centres in ARIA having populations of 1,000-4,999. Localities with populations greater than 1000 persons are considered to contain at least some basic level of services (e.g. health, education, or retail) (GISCA). Service centres with larger populations are assumed to contain a greater level of service provision. ARIA scores are based over 20,000 such localities throughout Australia.
In the report, remoteness areas are classified as Major cities; Inner regional or Outer regional areas (these two are referred to as regional when taken together); Remote and Very remote areas (remote when the last two are taken together). The term rural and remote is used when referring generally to areas outside Major Cities.
In this report, increasing the size of areas considered is used for estimates in analysis by remoteness from service centres. Very remote areas are often amalgamated with Remote areas and occasionally Very remote, Remote and Outer regional areas are amalgamated. Notes under the graphs confirm the extent of amalgamation. Extending the period of time in which cases are counted is also used in some indicators presenting health data by ARIA.
Postal areas are grouped according to the Australian Statistical Geographical Standard (ASGS) remoteness categories on the basis of Accessibility/Remoteness Index for Australia (ARIA+ version) score. For reporting purposes, outer regional, remote and very remote areas are aggregated in order to report reliable estimates of a range of health behaviours for non-metropolitan areas.
Australian Bureau of Statistics (ABS). 1270.0.55.005 - Australian Statistical Geography Standard (ASGS): Volume 5 - Remoteness Structure. Available at http://www.abs.gov.au/AUSSTATS/abs@.nsf/DetailsPage/1270.0.55.005July%202011?OpenDocument
National Centre for Social Applications of Geographic Information Systems (GISCA). About ARIA (Accessibility/Remoteness Index of Australia). Available at http://gisca.adelaide.edu.au/projects/category/about_aria.html
The current data collection form for the NSW Perinatal Data Collection (PDC) commenced in 2016. Codes are described in the NSW Perinatal Data Collection Manual - 2016 Edition, which is available on the internet at http://www1.health.nsw.gov.au/pds/ActivePDSDocuments/PD2015_025.pdf
In 2018 there were 95,552 births to 94,170 mothers in NSW, a decrease of 1.8% from 97,325 births in 2014. The percentage of multiple (twin and triplet) pregnancies has remained fairly stable over recent years at about 1.4%.
Between 2014 and 2018:
• The proportion of mothers who were teenagers continued to fall, from 2.7% to 1.9%.
• The proportion of births to mothers over 35 years of age has remained stable.
• The rate of low birth weight (less than 2,500 grams) has remained stable, ranging from 6.3% to 6.8%.
• The perinatal mortality rate was 8.1 per 1,000 births in 2018, increased from 7.8 per 1,000 births in 2014.
Aboriginal and Torres Strait Islander mothers and babies
Between 2014 and 2018:
• The number of reported births to Aboriginal or Torres Strait Islander mothers increased from 3,808 to 4,270, representing 3.9% and 4.5% respectively of all babies born in NSW.
• The percentage of Aboriginal or Torres Strait Islander mothers who were teenagers fell substantially from 15.8% to 11.5%.
• The percentage of Aboriginal or Torres Strait Islander mothers who commenced antenatal care before 14 weeks increased from 54.4% to 73.6%.
• The perinatal mortality rate of 11.7 per 1,000 births in Aboriginal or Torres Strait Islander mothers in 2018 is higher than the rate of 7.9 per 1,000 births experienced among babies born to non-Aboriginal or Torres Strait Islander mothers.
The health of Australian mothers and babies is generally good by world standards. Maternal deaths are rare, and perinatal mortality rates are low.
The average woman in NSW can currently expect to give birth to 1.9 babies in her lifetime.
NSW mothers are getting older with the mean maternal age at first birth around 29 years and at subsequent birth just over 30. The proportion of teenage mothers is declining.
Aboriginal mothers and babies, those from socioeconomically disadvantaged areas, and some overseas-born mothers and their babies continue to experience worse outcomes than other NSW mothers and babies.
The NSW Ministry of Health maintains two population-based surveillance systems that collect information concerning pregnancy and birth: the NSW Perinatal Data Collection and the NSW Register of Congenital Conditions. They assist in monitoring the health of mothers and babies and, maternity service planning in NSW.
The implementation of the NSW Aboriginal Maternal and Infant Health Strategy has improved access to culturally appropriate maternity services for Aboriginal mothers.
The NSW Maternal and Perinatal Mortality Review Committee reviews each death of a mother or newborn baby to assess the cause and identify any possible avoidable factors. This information is used to improve services for mothers and babies.
NSW Ministry of Health at http://health.nsw.gov.au, in particular see the annual New South Wales Mothers and Babies report, published by the Centre for Epidemiology and Evidence. The latest edition is available at http://www.health.nsw.gov.au/hsnsw/Publications/mothers-and-babies-2017.pdf
Australian Bureau of Statistics at http://www.abs.gov.au, in particular see Births (ABS Cat no 3301.0)
Australian Institute of Health and Welfare at http://www.aihw.gov.au in general and in particular the AIHW's National Perinatal Statistics Unit and the annual publication: Australia’s mothers and babies.
healthdirect at http://www.healthdirect.gov.au
Population and Public Health Division. Improved reporting of Aboriginal and Torres Strait Islander peoples on population datasets in New South Wales using record linkage–a feasibility study. Sydney: NSW Ministry of Health, 2012. Available at: http://www.health.nsw.gov.au/hsnsw/Publications/atsi-data-linkage-report.pdf
Australian Council on Healthcare Standards. Obstetrics Indicator User Manual. Sydney: ACHS. Available at: https://www.achs.org.au/